Paul cares for his wife suffering with this disease but my goodness it has been a difficult journey, and indeed, continues to be so.
Here he explains the difficulties encountered when trying to make sense of what was happening, why the diagnosis took so long, the role of the different health professionals involved, the sense of isolation and how they cope.
Powerful and humbling to listen to – as with all the carers I’ve spoken to, their love shines through everything.